Showing posts from March, 2017

The Spoons Don’t Work….

Over the last 18 months, I have been reading as much as my tired and foggy little brain will let me, not only about the nuts and bolts of ME (I am all too familiar with that!), but about how to communicate the experience to the average chronic-illness-virgin. I am also a chronic pain sufferer and it is similarly difficult to explain to the average person what it is like to be in constant pain that is apparently not going to get better, and has no specific cause.

Whilst friendships with healthy people have withered and fallen like crusty brown leaves to the ground, I have made new and warm connections with the very elderly and the chronically ill. I do not kid myself that this would have been probable (or even desirable) before I became a refugee, fleeing the uninhabitable world of wellness, and finding a safe haven with those who are generous with the little energy they have.

Nevertheless there IS a need to explain my deeply baffling illness. There are times I need to defend my corne…

It’s a Knockout!

You many or may not have memories of watching a TV programme with your parents called ‘It’s a knockout’. The show was hosted in a different UK location each week and featured local ‘ordinary people’ from two nearby locations, competing against each other in teams. The games were outsize versions of a junior school sports day: people were tied together, awkward objects were carried, races were made more difficult by the addition of foam, water or slippery surfaces ( no health and safety in those days)….and to add to the ridiculousness, most people were dressed in enormous foam suits that sagged high over their bodies, and had giant feet to trip them up for the hilarity of all.
During the last few weeks, I have been in a constant race of knockout , as I try to navigate a small flat dressed in baggy leggings and fluffy slippers, whilst slowly steering a bulky walker into door frames, spilling tea on the carpet and watching as my stick clatters to the floor nearly tripping me over. The Int…