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Showing posts from January, 2017

Then… And Now – What having ME has taught me.

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ME has overshadowed the whole of my adult life, and affected me badly twice: the first time when I was 22, and the second time, starting over 3 years ago….
In 1993 I was first diagnosed with ME.
That is to say I diagnosed myself and found a Doctor who knew what ME was and he agreed. Yes, I had ME...and I had to go home, rest and wait to get better. I felt as if I was staring into a void- I had no idea what that would mean or how I would cope. In 2015 I reluctantly had the same conversation with my GP- Could ME be responsible for the intolerable pain and other symptoms…? It was a conversation I had avoided having with myself, for some years.

Having struggled for years to continue part time working, I am now home and resting, and waiting again...and feeling very blessed for every scrap of life I have lived outside of being horizontal and being held hostage by my duvet. I am 48 now, and as a middle aged goddess ( I like to dream), I am looking back at my skinny little twenty something self,…

Who is The Chronic Elephant?

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ME and Chronic pain keep me bed-bound... and creating art and writing blogs keep me sane.

I blog about how to cope when pain is bad, what it feels like to receive well meant advice ( don't do it people!), how to keep your faith when you don't get better, explorations into planet Gluten Free, and how to avoid steering your disability scooter through something the dog owner should have bagged and binned..
The images posted on here are of me reclaiming my life and living it one tiny bit at a time. You can see art works inspired by my everyday life, about coping with life in bed, and images of flowers, plants, imaginary worlds, my faith and my felt tips.

You will also find my mumblings- writings, thoughts and blog entries, about being me and about having ME!





I have been writing blogs on ME and disability for the last year using 'the elephant' avatar and name. It started as a joke...(I am not likely to be wandering 'back to the jungle' anytime soon)....but I think the l…